I'm getting frustrated bordering on anger this morning.
I don't know what her schedule will be today. Huntsman and Rehab seem to be fighting over her. I keep telling them that she has an appointment at Huntsman at 10:45 but they just keep saying that they haven't heard anything about it. I called Huntsman and they said that they'd call and get it taken care of. It's a little frustrating. The Rehab Doctor is trying to push stimulants on her even though we keep telling them that they mess with her heart. They just don't want to hear it. The nurses last night made a big deal about her blood pressure, paging doctors, taking it over and over and over and over again, etc. They wouldn't listen to me when I tried to tell them that it is the same as it always is when they wake her up to take it. There is just a whole lot of dismissal of what we say that goes on down here. RAWR! Oh the other thing is, they keep giving her ranitidine. I keep telling them that she doens't need it because it was prescribed to cushion her stomache against the dexamethasone which she hasn't been taking for days now. What do we know though we're just the patient. We're just here 24 hours a day, while they change every few hours.
So my final thoughts: I'd rather have a living wife who went to radiation but can't walk as good as she used to, than a dead wife who didn't get radiation because learning to walk well is such an important skill for a corpse to have. At 10:30 I'm taking her to huntsman whether they like it or not, what are they going to do kick us out? We gotta get out of this place.
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