what is this blog about?

On June 18th 2010, Katrina went in to have an MRI done so the doctors could try to figure out why she was getting dizzy. What they found was a medulloblastoma (Brain Cancer) tumor between her fourth ventricle and cerebellum.

This blog is a journal for Her, and Her Husband, Scott, as they face this together.

Friday, March 30, 2012

Insurance and tests

So it's been forever since I last posted. Where are we? Well, Katrina needs to have a neuropsych test done, but the insurance is giving us the run around. Here's how it played out.

Katrina's rehab doctor refered us to a neuro-psychologist at the university. We called the insurance to clear it and they said that this doctor wasn't covered by our insurance and gave us a list of six doctors who were. We submitted those names to the rehab doctor and he picked one, then called us to let us know. Again, we called the insurance to make sure everything was set. Suddenly none of the doctors they gave us were available on our plan. That's right THEY gave us a list of six doctor who were NOT on our plan. GRRrrrrRRRr. So I went on their site an I looked up the neuro-psychologists that are on our plan and we gave that list to the Rehab doctor. We are waiting to hear back.

This whole process has taken about two months. Yuck!

So what is a neuropsych test? Essentially it's a prolonged (5hr)test similar to an IQ test that is designed to test how she performs mentally over and extended period of time under stress. We need to have this done to decide how to move forward with everything.

Wednesday, November 16, 2011

MRI Results

Katrina's scan came back clean. No visible cancer in her brain or spine.

Monday, November 7, 2011

Guilty

I've been feeling guilty lately about not posting. I'm not even sure there is very much interest in the blog anymore.

Life has been crazy for us these past few months. Lots of family drama and other trials. We've had lots of close family in and out of the hospital for one reason or another and Three Divorces. Top all that off with the fact that I've gone back to work and school.

College is going great for me. I'm about three weeks ahead of schedule in my courses. I just passed LUT 1 today! Work has been fun too. I'd forgotten how much more fun it was to be a staff member than director.

Katrina is doing pretty good too. I know that her rehab doctor's are pleased with her progress. It's not all peaches and cream but she has come a long way. Especially given that all she could do right after surgery was drool on herself and cry weakly. It wasn't pretty and thankfully it seems like a distant nightmare now. She has her total cerebral spinal MRI this week and then a follow up with the Chemo Doc to discuss it. I hope our blessings hold out and it comes back clean. We've been fortunate that her scans have been coming back clean so far, although her white count has never really recovered from the radiation.

Thank you to those of you who continue to keep us in your thoughts and prayers.

Friday, August 26, 2011

Trouble comes in thr. . . err . . . fours?

So It seems our trouble is not over yet. Katrina's mom was admitted to the hospital last night. She had some pockets of infection in her body and one ruptured. The doctors where hoping that surgery wouldn't be required and that her body would fight off the infection on its own.

This evening her temperature spiked and her pain "came back with a vengeance." They are taking her into the OR asap.

Friday, August 19, 2011

Doctors and School

We had a Rehab follow up appointment for Katrina today. He says he sees improvement which is encouraging. I noticed that her legs aren't spread nearly as wide as they used to have to be to keep her balance. He's also prescribing her some medication that is supposed to give a little kick in the pants to her thinking ability. Hopefully this will help her ratchet up to the high functioning, multitasking, Thinker that she used to be. Sometimes it's like she is painfully close to being back to normal, but it's just out of reach. Hopefully this gives her that little extra boost.

I Have begun the process to return to College. I got my Associates degree years ago then life happened and I never completed my course of study. It has been on my mind a lot the last few months. What would i do if I lose Katrina or she's never able to return to work. Unpleasant questions to ask myself to say the least, but I feel they are important ones to ask. I feel like I need to have my degree and right now while we watch and wait is probably about as good a time to do it as we are going to get. I'm nervous about the financial side of that. Things are ultra tight for us and will probably get worse before they get better. So I'm hoping to get some financial aid figured out.

If you know of any scholarships for male teachers let me know. I need everything I can get.

Thursday, August 11, 2011

Trouble comes in threes

Trouble comes in threes. Hopefully that means we're done for a while.

After My brother and cousin have both ended up in the hospital I am sad to say that Katrina's Grandmother passed away this morning.

Tuesday, August 9, 2011

Doctor's Appointment Update 8-9-11

We had an appointment to follow up with the Chemo doctor today. Things still look good with no new growth. He white level counts have climbed two tenths and she weighed 99 pounds.

We had an opportunity to visit with my Cousin, His wife and My aunt and Uncle. My cousin had a farming accident Friday and hurt his hand pretty bad. He seemed in good spirits. Please pray for him and his family as they go through their struggles right now. In farming your hands are are pretty important things, and I know that they'd really appreciate the prayers. I wish that Katrina and I were in a better position to help them out some how. They are just good down to earth, friendly people, whom I really feel it a pleasure to call family.

An update on my brother, he's doing well. They seem to have the brain swelling and blood thickness under control He's up and around being a nerdy teenager again.