what is this blog about?

On June 18th 2010, Katrina went in to have an MRI done so the doctors could try to figure out why she was getting dizzy. What they found was a medulloblastoma (Brain Cancer) tumor between her fourth ventricle and cerebellum.

This blog is a journal for Her, and Her Husband, Scott, as they face this together.

Friday, May 27, 2011

Friday Update 5-27-11

We've been waiting most of this month to find out if her disability insurance was going to go through or not. Yesterday we called, again, to find out what was going on. It turns out that they have been waiting for our health insurance to send her records to them.

We called the Health insurance company and they pretty much said they weren't going to provide that information to anyone and that if we wanted it done we had to go on their website and print them off ourselves. So we did and then we faxed them to the Disability insurance people. Hopefully things get going now.

Also, We found out on the 24th that we had to apply for COBRA to continue our insurance since her disability hasn't gone through yet. That's going to cost us $1300.00,which we can't afford, but that's still cheaper than trying to pay her medical bills ourselves. Yuck! The good news is that if she is approved for disability the School district will take back over paying for her insurance.

The point of this update is that we need your prayers. We are on the cusp of severe trouble. Please pray that her disability gets approved and that it happens quickly.

Friday, May 20, 2011

Friday Update 5-20-11 HAPPY BIRTHDAY!!!

Well today is Katrina's Birthday. Happy birthday love.

Therapy has been nice. Unlike the last speech therapist we saw this one involves me in the process which helps me, because then I can help re-enforce the things they are doing at home. The last one didn't even want me in the room.

We are still waiting to hear back on her disability benefits, which is frustrating. I'd just like to know where we are so we can move forward.

Friday, May 13, 2011

Friday Update 5-13-11

We found out after the testing with the rehab lady that Katrina preforms well mentally until there is an outside distraction like a time constraint or other things going on. Then things don't work so well for her. Our insurance authorized eight sessions so we'll have lots of homework in between.

We also met with the chemo doctor again this week and her MRI still looks clean. I was really worried going in though because our luck has been touchy lately.

We've also had some very generous gifts given too us. Although we don't know who you are we want you to know we are truly grateful. Thank you.

Friday, May 6, 2011

Friday Update 5-6-11

We had her first new rehab appointment today. It went well. We were there way early because it's all interstate all the way and not stop and go city driving, which was nice.

We don't really have a rehab plan yet. She just did some testing today and she'll finish up next week; then we'll go from there.


Thank you again to people who keep praying for us, and doing whatever they can to help. I'm still surprised at people's generosity and am grateful for the blessing it has been in our lives.


Oh, By the Way, we go the basement dried out. It took like four days given the cool humidity last week but the basement is put back together. I also fixed my tub which broke Saturday night.

Thursday, April 28, 2011

Friday Update on Thursday. 4-28-11

When it rains it pours . . . down the basement wall and across the billiard table.

Lately we've just seem to be having one of those spats of rough luck that everyone goes through once in a while. Yesterday was no exception.

Last summer I felt the faucet on the front of our house twist a little. A similar thing happened the same week we moved in years ago. Back then the faucet pipe broke in the house and it was a mess. Luckily, Or so I thought, that didn't happen last summer. Fast forward to yesterday and I decided to test some sprinklers on my hose. The pressure burst the pipe just like when we first moved in. only this time I was blissfully ignorant of it due to the fact that I was outside fiddle farting around. Luckily Katrina had to go down stairs for something or it could have been much much worse. fifty dollars (we don't have) and several hours later we had the water turned back on and the basement drying out.

Also we came to the tough decision that it would be better, for a number of reasons, if we found a new home for our dog. He's an AKC papered pure bred Basset Hound who has not been neutered (we originally had hoped to breed him). He's just over five years old and stubborn as an ox (Basset hounds can be like that). He's Always been an outside dog and doesn't care to be in the house for more than a few minutes unless he's getting attention. If you know anyone who might be interested let us know.

Saturday, April 23, 2011

Friday . . . Er . . . Saturday Update 4-23-11

I meant to post yesterday but the day just got away from me.

The last couple of weeks have really been a roller coaster ride of emotion.

Last week Katrina's Principal Provided us with a letter that described the areas of concern that she was seeing with Katrina at work. It was very well worded and showed a lot of love and concern while being necessarily blunt. It described how Katrina functioned before the cancer as opposed to now to make it clear that this isn't a choice Katrina made to just stop providing the best quality work she can.

Monday we took that letter to our rehabilitation doctor at the hospital. He glanced over it an recommended that Katrina go back to part time as well as begin some cognitive therapy again. He referred us to a lady in Sugar House who he she in his opinion was the best in the state for these sorts of issues. Being the best in the state we are on a waiting list to see her.

Tuesday the district approved the hiring of another certified teacher "Sub" for Katrina to team teach with for the rest of the year.

Thursday the doctors office called us. After the doctor had looked more closely at the letter He decided that it would be best if Katrina went off work entirely. We are currently working to get her disability insurance going again.

In a way it is kind of a relief to me. It has been so hard for me to watch as she struggled and fought so hard to do the best she could and kept coming up sort at work. The fact of the matter is that she just wasn't ready cognitively to return to work. Unfortunately there was no way we could have known that without alot of pain and stress all around. She may have to work a few days into may but after that she'll be back disability for . . . we don't know how long. Maybe a year, maybe until she's 65.

I'm okay with her being home, and I'm okay with looking for work myself. The only problem is that I don't feel like I can find a job just yet if I've got to be taking her to Sugar House and back all the time. In the Mean time I mentioned that do have another project that I have been working on, so I'm going to polish up some of that and see what happens. I really hope it works, It's something I've always wanted to do and being home these last few months has given time to do it.

The future is still very unsure, but I'm more at peace than I have been in weeks.

Friday, April 15, 2011

Friday Update 4-15-11

It has been a tough week for us. Katrina has really struggled at work this term. It is an unfortunate situation all around I don't don't think anyone involved feels good about how things have gone. Parents are understandably concerned about the education of their students. It's just not a happy situation for any of us and we are currently working with her principal and the district to see what can be done to help Katrina. We are currently working on a couple of ideas (which I won't discuss here) that should help to ensure The students get a quality education while still allowing Katrina to Work in some capacity.

I'm also putting out feelers about employment myself in hopes of possibly relieving some of her burden depending on what we her back from the district in the next little bit. Also I've been working on a project at home that one day might help with that regard as well, but again I don't want to discuss that publicly either. especially since it might all be pipe dreams anyway.

We decided just today to register our daughter for kindergarten at the school near our home instead of Katrina's school. At this point we aren't sure where Katrina will be next month let alone next year. Plus the Local school has all day kindergarten which Katrina's school doesn't

How can I sum this week up. A whole lot of yuck and a whole lot of tears.

P.S. To the anonymous person or Persons who keep dropping envelopes in Katrina's box at work; Thank You. It helps immensely.